2016 -- H 8149

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LC005721

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     STATE OF RHODE ISLAND

IN GENERAL ASSEMBLY

JANUARY SESSION, A.D. 2016

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H O U S E   R E S O L U T I O N

EXTENDING THE EXPIRATION DATE AND AMENDING THE MEMBERSHIP OF THE

SPECIAL LEGISLATIVE COMMISSION TO STUDY THE CREATION OF A COUNCIL TO

COORDINATE RESOURCES FOR PROVIDING CARE TO INDIVIDUALS WITH RARE

DISEASES

     

     Introduced By: Representatives Kazarian, Bennett, Chippendale, Azzinaro, and Amore

     Date Introduced: May 04, 2016

     Referred To: House Health, Education & Welfare

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     RESOLVED, That the special legislative commission created by resolution No. 408

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passed by the House of Representatives at its January session, A.D. 2015, and approved June 18,

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2015, entitled "House Resolution Creating a Special Legislative Commission to Study the

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Creation of a Council to Coordinate Resources for Providing Care to Individuals with Rare

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Diseases" is hereby authorized to continue its study, and said commission shall expire on June 24,

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2019; and, be it further

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     RESOLVED, That the composition of said commission is hereby amended to consist of

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twenty (20) members: three (3) of whom shall be members of the Rhode Island House of

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Representatives, not more than two (2) from the same political party, to be appointed by the

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Speaker of the House; one of whom shall be the Director of the Rhode Island Department of

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Health, or designee; one of whom shall be the President of the Hospital Association of Rhode

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Island, or designee; two (2) of whom shall be individuals diagnosed with a rare disease, to be

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appointed by the Speaker of the House; one of whom shall be a caregiver of an individual

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diagnosed with a rare disease, to be appointed by the Speaker of the House; one of whom shall be

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the Associate Dean of Medicine for Public Health and Policy at the Alpert Medical School at

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Brown University, or designee; one of whom shall be the President of the Rhode Island Public

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Health Association, or designee; three (3) of whom shall be representatives of Rhode Island

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health insurance companies, to be appointed by the Speaker of the House; two (2) of whom shall

 

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be representatives of the Pharmaceutical Industry, to be appointed by the Speaker of the House;

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one of whom shall be a representative of the biotech industry, to be appointed by the Speaker of

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the House; three (3) of whom shall be physicians, to be appointed by the Speaker of the House;

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and one of whom shall be a representative from a rare disease organization, to be appointed by

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the Speaker of the House; and be it further

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     RESOLVED, That the expiration date authorized by resolution No. 408 and passed by

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the House of Representatives at its January session, A.D. 2015, and approved June 24, 2015, be

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and the same is hereby rescinded.

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EXPLANATION

BY THE LEGISLATIVE COUNCIL

OF

H O U S E   R E S O L U T I O N

EXTENDING THE EXPIRATION DATE AND AMENDING THE MEMBERSHIP OF THE

SPECIAL LEGISLATIVE COMMISSION TO STUDY THE CREATION OF A COUNCIL TO

COORDINATE RESOURCES FOR PROVIDING CARE TO INDIVIDUALS WITH RARE

DISEASES

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     This resolution would increase the membership of the special legislative commission to

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study the creation of a council to coordinate resources for providing care to individuals with rare

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diseases from nine (9) to twenty (20), and said commission would expire on June 24, 2019.

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