2023 -- S 0831

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LC002488

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     STATE OF RHODE ISLAND

IN GENERAL ASSEMBLY

JANUARY SESSION, A.D. 2023

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S E N A T E   R E S O L U T I O N

COMMEMORATING "TURNER SYNDROME AWARENESS MONTH" IN THE STATE OF

RHODE ISLAND

     Introduced By: Senators Miller, F. Lombardi, Ciccone, DiMario, Gu, Murray, Lauria,
Raptakis, and Britto

     Date Introduced: March 23, 2023

     Referred To: Recommended for Immediate Consideration

     WHEREAS, Turner Syndrome is a rare, noninheritable chromosomal condition that

affects approximately 300 women in Rhode Island, with 1 in 2,000 female-affected births

occurring world-wide and over 1,000 baby girls born annually with the Syndrome; and

     WHEREAS, Individuals with Turner Syndrome often have nonverbal learning

disabilities, early ovarian failure, hearing problems, and are short in stature, which can result in

reduced functional skills and job retention; and

     WHEREAS, In addition, the risk for acute aortic dissection is increased by more than a

hundredfold in young and middle-aged women with Turner Syndrome, but with early diagnosis,

support services and the help of medical specialists, females with Turner Syndrome can live a

long and healthy life; and

     WHEREAS, Growth hormones, estrogen supplements, occupational therapy, and early

monitoring of medical issues involving the heart, kidneys and thyroid, diabetes, hearing loss and

more, produces positive outcomes and essential quality of life benefits; and

     WHEREAS, The signs of Turner Syndrome should be detected during a girl's first few

years of life for the best possible outcomes however, currently, the average age for diagnosis of

Turner Syndrome is between 7 and 17; and

     WHEREAS, Greater awareness for this condition and its many complications will allow

health care providers to diagnose this condition much earlier and will allow for more research in

order to better treat the health issues affecting women with Turner Syndrome; now, therefore be it

     RESOLVED, That this Senate of the State of Rhode Island hereby commemorates

“Turner Syndrome Awareness Month” and urges the State’s citizens and medical professionals to

share experience and information to raise public awareness about Turner Syndrome; and be it

further

     RESOLVED, That the Secretary of State be and hereby is authorized and directed to

transmit duly certified copies of this resolution to Utpala Bandy, MD, MPH, Interim Director at

the Rhode Island Department of Health, the Turner Syndrome Foundation, and Ms. Nicole Topp.

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