Chapter 04-601

2004 -- S 2798 AS AMENDED

Enacted 08/05/04

 

A N  A C T

RELATING TO DEPARTMENT OF ADMINISTRATION - ORGAN TRANSPLANT FUND

     

     Introduced By: Senator Leo R. Blais

     Date Introduced: February 11, 2004

 

 

It is enacted by the General Assembly as follows:

 

     SECTION 1. Section 42-11-13 of the General Laws in Chapter 42-11 entitled

"Department of Administration" is hereby amended to read as follows:

     42-11-13. Rhode Island organ transplant fund. -- (a) There is hereby created the

Rhode Island organ transplant fund, hereinafter referred to as "the fund". The general treasurer

shall invest and reinvest the same in accordance with section 35-10-2. The department of human

services shall administer the organ transplant program. Disbursement of funds from the fund shall

be made by the general treasurer upon receipt by him or her of properly authenticated vouchers

from the department of human services.

      (b) The fund shall consist of all revenues received pursuant to section 44-30-2.1 and

gifts, grants, and donations from public and private sources. All revenues credited to the fund

shall not be subject to expenditure except for the purposes hereinafter stated.

      (c) The fund shall be used to help defray any expenses of human organ transplants

incurred by Rhode Island residents and their families. For purposes of the fund, family shall be

limited to the parents or spouse or guardian or next-of-kin of the recipient of the organ transplant.

Expenses shall be limited to nonreimbursed costs associated with organ transplants including

hospital and medical care, all drugs prescribed exclusively for post- which relate to organ

transplant maintenance (disbursement from fund for maintenance drugs shall be limited to fifty

percent (50%) of average wholesale price or fifty percent (50%) of nonreimbursed costs

whichever is less), and out-of-state living expenses of the family for a period of not more than

sixty (60) days at the time of the organ transplant operation. (The disbursement from the fund for

out-of-state living expenses shall not exceed the per diem rate allowed state employees for

accommodations and sustenance.) Disbursement from the fund shall not be made until the

principal of the fund equals fifteen thousand dollars ($15,000). The general treasurer shall

publicly announce when the principal of the fund equals fifteen thousand dollars ($15,000).

Application for the disbursement from the fund shall not be made or accepted until the principal

of the fund equals fifteen thousand dollars ($15,000). In addition to the foregoing allowable

disbursements, disbursement for organ transplant recipients may be made from the organ

transplant fund to meet the recipient's spend-down requirement for the Rhode Island medical

assistance program (Medicaid), provided that the recipient's income does not exceed twelve

thousand dollars ($12,000) per year, and the funds are repaid by the recipient and deposited in the

organ transplant fund are repaid by the recipient and deposited in the organ transplant fund over

the six (6) month Medicaid spend-down period in six (6) equal monthly payments.

      (d) Disbursements from the fund and the fund itself are not entitlement programs. The

fund shall not incur a deficit.

      (e) The director of the department of human services shall promulgate rules and

regulations, in accordance with the Administrative Procedures Act, section 42-35-1 et seq., to

implement the operation of the fund. The director of the department of human services or his or

her designee shall confer with the general treasurer prior to promulgating rules and regulations.

      (f) This fund shall operate prospectively provided, however, a Rhode Island resident on

maintenance drugs as set forth in subsection (c) of this section may apply for disbursement after

the principal of the fund equals fifteen thousand dollars ($15,000).

     SECTION 2. This act shall take effect January 1, 2005.

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LC00232

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