10-R194
2010 -- H 8040
Enacted 04/14/10
H O U S E R E S
O L U T I O N
PROCLAIMING MAY
12TH OF 2010 TO BE "NEURONENDOCRINEIMMUNE
DISORDERS
AWARENESS DAY" IN THE STATE OF
Introduced By: Representatives Gallison, Naughton, Fierro, McNamara, and Messier
Date Introduced: April 14, 2010
WHEREAS, An estimated 20 million children and adults in the
millions more people worldwide have been diagnosed with neuroendocrineimmune disorders
(NEIDs); and
WHEREAS, These conditions include chronic fatigue syndrome (CFS), myalgic
encephalomyelitis (ME), or myalgic encephalopathy (ME), fibromyalgia
syndrome (FMS),
chronic or persistent Lyme disease
(CLD); Gulf War syndrome/illnesses (GWS/GWI),
environmental illnesses (EI) or multiple chemical sensitivity (MCS);
and
WHEREAS, These complex illnesses are expressed in a multitude of
symptoms affecting
multiple body systems and for which there is no scientific
understanding or explanation, no
medical treatment, and significant loss of patient quality of
life; and
WHEREAS, NEIDs strike women, men, and children of all races and
ages, and of all
socio-economic groups; and
WHEREAS, Individuals
with these illnesses experience “flu-like symptoms”, sore throat;
extreme fatigue; widespread pain in muscles, joints, and
ligaments; insomnia, muscle stiffness;
migraine headaches; the symptoms of restless leg syndrome;
numbness and tingling in
extremities; respiratory difficulties; debilitating sensitivities
to chemicals in the environment;
peripheral neuropathy; sleep disturbances; cognitive impairment
of memory and concentration,
endocrine system abnormalities; and chronic viral infections
and bacterial infections; and
WHEREAS, NEIDs are as disabling as chronic obstructive pulmonary
disease, end-stage
renal failure, and rheumatoid arthritis, and are as impairing
as multiple sclerosis, AIDS, and
chemotherapy cancer treatments; and
WHEREAS, NEIDs are chronic illnesses that can be life-threatening
and are increasing at
alarmingly epidemic rates; and
WHEREAS, It often takes an average of 3 to 7 years to receive a
diagnosis for any of
these disorders because medical professionals frequently do
not receive adequate training for
diagnosis of NEIDs; and
WHEREAS, P.A.N.D.O.R.A.—Patient
Organization for Research & Advocacy, Inc.—is a
nonprofit, national charitable organization
dedicated to finding a cure for NEIDs
and advocating for quality of life for individuals stricken
with these illnesses in
WHEREAS, P.A.N.D.O.R.A.
has joined with other patient empowerment groups and
patient organizations worldwide to promote awareness of NEIDs and the need for patient
advocacy, to establish healthcare provider NEIDs
education programs, to develop and increase
accurate diagnostic criteria for these illnesses and to
stimulate research that will identify the
causes and treatments of these disorders; and
WHEREAS, Community
knowledge of NEIDs and their impact on patients and
their
families will promote hope for a better future for people with
NEIDs; now, therefore be it
RESOLVED,
That this House of Representatives of the State of
Providence Plantations
hereby proclaims May 12th of 2010 to be “Neuroendocrineimmune
Disorders
Awareness Day.” We furthermore
recognize the difficulties encountered by these
chronically-ill individuals in our state and urge all of our citizens
to support the search for a cure
and assist those individuals and families who deal with
these devastating diseases on a daily
basis; and be it further
RESOLVED,
That the Secretary of State be and he hereby is
authorized and directed to
transmit a duly certified copy of this resolution to the
Patient Alliance for
Neuroendocrineimmune Disorders Organization for Research
& Advocacy, Inc.
(P.A.N.D.O.R.A.).
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LC02448
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