12-R297

2012 -- S 2858

Enacted 05/25/12

 

 

J O I N T R E S O L U T I O N

AFFIRMING THE NEED FOR A STATE PLAN FOR ALZHEIMER’S DISEASE AND RELATED DISORDERS

 

 

     

     

     Introduced By: Senators Jabour, Ruggerio, Paiva Weed, Walaska, and Gallo

     Date Introduced: April 10, 2012

 

 

 

     WHEREAS, Alzheimer’s disease is a fatal, degenerative disease of the brain that impairs

cognitive function, memory, and behavior; and

     WHEREAS, Alzheimer’s disease is not part of the normal aging process; and

     WHEREAS, Alzheimer’s disease is the sixth leading cause of death in the United States

and the fifth leading cause of death for those over 65 years of age; and

     WHEREAS, Alzheimer’s disease is the only leading cause of death that cannot be

prevented, cured, or even slowed; and

     WHEREAS, An estimated 5.4 million people nationwide have Alzheimer’s disease,

including 200,000 individuals under the age of 65; and

     WHEREAS, In 2010, approximately 24,000 Rhode Island residents were living with

Alzheimer’s disease; and

     WHEREAS, Alzheimer’s disease is the most common type of dementia, accounting for

an estimated sixty to eighty percent of incidence; and

     WHEREAS, People living with Alzheimer’s disease and related disorders use hospital,

nursing home, and other health and long-term care services at a high rate, resulting in high costs

to Medicare, Medicaid, and other payers; and

     WHEREAS, Medicaid payments for beneficiaries over the age of 65 with Alzheimer’s

disease are nine times higher than payments for those without the disease; and

     WHEREAS, By the year 2050, the total cost of care nationally for individuals with

Alzheimer’s disease is expected to soar from $172 billion in 2010, to more than $1 trillion (in

today’s dollars); and

     WHEREAS, Medicaid’s share of that spending will increase over 400 percent during that

time; and

     WHEREAS, These costs do not reflect the value of unpaid care provided to those living

with Alzheimer’s disease by family members and friends; and

     WHEREAS, There are over 50,000 unpaid caregivers providing an estimated 60 million

hours of uncompensated care for people living with Alzheimer’s disease; and

     WHEREAS, Alzheimer’s disease takes a tremendous emotional toll on all whose lives it

touches, including family members, friends, and especially the caregivers of those living with

Alzheimer’s disease; and

     WHEREAS, Caregiving has negative effects on the caregiver’s own employment,

income, financial security, and health; and

     WHEREAS, The projected growth in the aging population of Rhode Island, combined

with the particular needs of the Alzheimer’s disease population, present a substantial and unique

challenge to the state; and

     WHEREAS, On January 4, 2011, President Obama signed into law the National

Alzheimer’s Project Act (NAPA), requiring the Secretary of the U.S. Department of Health and

Human Services to establish a national Alzheimer’s Project; and

     WHEREAS, On February 22, 2012, the U.S. Department of Health and Human Services

released a Draft National Plan to Address Alzheimer’s Disease, which includes the goal of

preventing or treating Alzheimer’s disease by 2025; and

     WHEREAS, Rhode Island has a significant opportunity to build upon this national

momentum, as well as to identify and address the distinct needs and unique challenges to the state

posed by Alzheimer’s disease and related disorders; now therefore be it,

     RESOLVED, That this General Assembly of the State of Rhode Island and Providence

Plantations hereby affirms the need for a state plan for Alzheimer’s disease and related disorders,

which shall serve as a comprehensive state strategy for educating the public about Alzheimer’s

disease, collecting and analyzing statewide data related to the current and future needs of

Alzheimer’s patients and their caregivers, and recommending ways to improve the provision of

care and availability of community supports for those living with Alzheimer’s disease and their

caregivers; and be it further

     RESOLVED, That the Long-Term Care Coordinating Council, as established in R.I.G.L.

23-17.3, convene an Alzheimer’s disease and related disorders working group (hereafter

working group”), to be co-chaired by the chair of the Long-Term Care Coordinating Council, the

lieutenant governor or designee, and the director of the division of elderly affairs, for the purpose

of developing such a state plan; and be it further

     RESOLVED, That the working group consist of community stakeholders, including, but

not limited to, members of the long-term care coordinating council; and be it further

     RESOLVED, That the working group shall transmit to the governor and to the general

assembly a state plan for Alzheimer’s disease and related disorders on or before July 1, 2013; and

be it further

     RESOLVED, That the Secretary of State be and he hereby is authorized and directed to

transmit duly certified copies of this resolution to the Governor of the State of Rhode Island, the

Lieutenant Governor of the State of Rhode Island, the Secretary of Health and Human Services,

the Chairperson of the Long-Term Care Coordinating Council, and the Director of the Division of

Elderly Affairs.

     

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LC02415

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