R 249
2016 -- H 8149
Enacted 05/24/2016

H O U S E   R E S O L U T I O N
EXTENDING THE EXPIRATION DATE AND AMENDING THE MEMBERSHIP OF THE SPECIAL LEGISLATIVE COMMISSION TO STUDY THE CREATION OF A COUNCIL TO COORDINATE RESOURCES FOR PROVIDING CARE TO INDIVIDUALS WITH RARE DISEASES

Introduced By: Representatives Kazarian, Bennett, Chippendale, Azzinaro, and Amore
Date Introduced: May 04, 2016

     RESOLVED, That the special legislative commission created by resolution No. 408
passed by the House of Representatives at its January session, A.D. 2015, and approved June 18,
2015, entitled "House Resolution Creating a Special Legislative Commission to Study the
Creation of a Council to Coordinate Resources for Providing Care to Individuals with Rare
Diseases" is hereby authorized to continue its study, and said commission shall expire on June 24,
2019; and, be it further
     RESOLVED, That the composition of said commission is hereby amended to consist of
twenty (20) members: three (3) of whom shall be members of the Rhode Island House of
Representatives, not more than two (2) from the same political party, to be appointed by the
Speaker of the House; one of whom shall be the Director of the Rhode Island Department of
Health, or designee; one of whom shall be the President of the Hospital Association of Rhode
Island, or designee; two (2) of whom shall be individuals diagnosed with a rare disease, to be
appointed by the Speaker of the House; one of whom shall be a caregiver of an individual
diagnosed with a rare disease, to be appointed by the Speaker of the House; one of whom shall be
the Associate Dean of Medicine for Public Health and Policy at the Alpert Medical School at
Brown University, or designee; one of whom shall be the President of the Rhode Island Public
Health Association, or designee; three (3) of whom shall be representatives of Rhode Island
health insurance companies, to be appointed by the Speaker of the House; two (2) of whom shall
be representatives of the Pharmaceutical Industry, to be appointed by the Speaker of the House;
one of whom shall be a representative of the biotech industry, to be appointed by the Speaker of
the House; three (3) of whom shall be physicians, to be appointed by the Speaker of the House;
and one of whom shall be a representative from a rare disease organization, to be appointed by
the Speaker of the House; and be it further
     RESOLVED, That the expiration date authorized by resolution No. 408 and passed by
the House of Representatives at its January session, A.D. 2015, and approved June 24, 2015, be
and the same is hereby rescinded.
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LC005721
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